Monday 27 August 2018

After infusion 27-08-18

I found todays infusion quite depressing. I don't know why. The nurses were busy, they couldn't find a vein and after about 30 mins or so they finally found one near the knuckle of my index finger. Bloody sore putting the damn needle in. 

Think I felt a bit overwhelmed by how busy the nurses were and the realisation of how many of us have this stupid cancer. 

And then I find out that not many turned up at a birthday dinner on Sat night that I was spose to go to but was just so tired and feeling oomph-less. I feel like I was being made to feel guilty but I can't think like that. I have to put myself first. At least I text the person to say I wasn't coming and then again today to apologise (before being guilted). 

I openly admit I'm not too reliable right now...to attend anything. I just don't feel up to it...

But right at this moment am feeling quite flat. Just don't want to talk to anyone or listen to anyone. Perhaps an early night is called for.

Monday 27th August 2018 - 12.30pm

Thursday 23 August 2018

Unwritten law

Is there an unwritten law saying you can’t possibly have it too good for too long? It’s simply too much to ask for. I’ve been feeling so good lately, both in my head and with not having any pain, but suddenly the dreaded aches have come back. I was feeling a bit off on Monday night and when my alarm went off Tuesday morning, I just felt off. I was tired even though I’d had a decent nights sleep and my back and sides were aching like they haven’t in a long time, so needless to say I stayed home in bed all day. Two days later I am still feeling the aches but the good thing about taking 15 mg tablets of codeine is that I can play around with them, adding extra if needed. Today, a couple of times I popped 30mg and while it helped, it didn’t do the job completely. After dinner tonight, I decided to pop an extra one again, so took 45mg and I am feeling quite good. I’m not worried about upping the dose - at one stage I was taking 60mg a time, so 45mg should be good. My only concern if I need to take them tomorrow is the tiredness I will experience while I’m at work...not to mention back to taking laxsol to keep the bowels moving - ugh...hopefully they’ll disappear as quickly as they’ve arrived.

Life is plodding along as normal. Still waiting on a date for the article being published in the Womans Day magazine. The editor said she’ll give me a heads up. I’m hoping to get copies of the photos the photographer took of my wee girl and I - the ones we flicked through on his camera were beautiful. If I want to put any up on here or facebook, I have to pay for them so guess it comes down to how much it could cost per picture. It would be nice to share them...not every day you get your hair, make up and clothes done for you! The article has been done through Sweet Louise, and while its my story, it was really about putting a plug in for them. They are the only organisation who support those of us with metastatic breast cancer and naturally I had never heard of them before my journey...so I would love dearly to be able to get their name out there and become more known.

A selfie taken after our photo shoot for magazine article

Life is very quiet at the moment...since coming back from Melbourne at the end of July, our older girl is still over there - looking at the job situation. I have been encouraging her to stay there, as she lives so quietly here, very much a home body and while there is nothing wrong with that, I am happy to see her outside her usual comfort zone. I kind of hope something comes up, even if only for a few months. And I know she’s safe with her aunty, uncle and cousins.
The cat is making sure our big girls room isn’t left empty for too long...

Our wee girl is almost never home and so it is just hubby and I. To be honest, I am enjoying it...I never thought I would say that! I don’t really know what it is, the girls were never noisy, they would always be in their rooms or out but I am  revelling in the quiet. The one draw back is that I have to do my own food shopping and save it for the weekend as I am pretty hesitant about night driving during the winter time. I feel like I am an accident waiting to happen...its been coming on for a while. I’ll drive if I have to and only places I know well but I would prefer not to if at all possible. But even food shopping isn’t too much of a chore. I know I have to do it and so I set my mind to “cruise control” so I don’t ram anyone who gets in my way, I take a deep breath and wait if someone leaves their trolley in the middle of the aisle and so I’m not hyperventilating or in a rage as I am leaving...who ever knew I could keep my calm at the supermarket!!!! Wow, those happy pills are a miracle worker...

My crocheting of baby blankets continues. The damn wool is costing me a fortune and I need to cut it down due to a nice big credit card bill to pay off. I am a bit snobbish with my wool and have been buying it at Spotlight but need to source it elsewhere, cheaper. I am thinking about seeing if I can maybe sell some, not sure whether to do it on TradeMe or start up my own facebook page. I have had a bit of interest from people, so wonder if I can tap into that a little bit. Even if it was to just aid in the paying of more wool...or could I put that money aside and use it to fundraise for Sweet Louise...or maybe it could simply be a bit of pocket money to help out with stuff...I don’t know. I’d quite like to put a few ‘pretty’ blankets together so I could ‘advertise’ them for sale.

A couple of my latest efforts


Even the cat likes them...she’s been itching to jump on each one but gets given the short shift

Since being home from Melbourne, I haven’t been terribly sociable - not for any other reason than I am just enjoying being at home by myself while hubby goes to darts in the weekend. And I don’t feel like it...am happy for others to pop over for a visit, I just don’t feel like going too far. And so in a nutshell, thats what I have been up to. My next treatment is this coming Monday. I went for my bloodtest yesterday, no bloodtest, no treatment as I discovered a few months ago. And so for now, I will continue to plod along, taking each day as it comes. Happy in the knowledge that I am ok with my own company...

Thursday 23rd August 2018 - 9.45pm